AUSTRALIAN BRONCHIECTASIS REGISTRY (ABR)
Non-cystic fibrosis (non-CF) bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. There is currently no cure for non-CF bronchiectasis and little information is available on the disease’s incidence, diagnosis or mortality rates in Australasia.
The Australian Bronchiectasis Registry (ABR) was established in 2015 by Lung Foundation Australia and the Australasian Bronchiectasis Consortium, an independent steering committee composed of leading respiratory physicians with expertise in clinical management and research in bronchiectasis.
The Australasian Bronchiectasis Consortium is proud to have international collaborations with the American Bronchiectasis Registry and the European Bronchiectasis Registry to leverage knowledge, expertise and optimise research outcomes.
Following the initial roll-out of the project, the registry has received agreements from more than 20 hospitals and health services across nearly all Australian States and Territories. The response has been highly successful, with recent expansion to New Zealand in progress which will enable recruitment to the newly-established New Zealand Bronchiectasis Registry.
|State or Territory||Healthcare Centre||Principal Investigator|
|New South Wales||Concord Hospital|
Royal Prince Alfred Hospital
Sydney Children's Hospital, Randwick
|A/Prof Lucy Morgan
Dr Cameron Hunter
A/Prof Peter Middleton
Prof Peter Bye
Dr Louisa Owens
|Queensland||Lady Cilento Children’s Hospital|
Mater Hospital Brisbane
The Prince Charles Hospital
|Prof Anne Chang
A/Prof Rachel Thomson
Dr Lucy Burr
Dr Daniel Smith
|Victoria||Monash Medical Centre||Dr Paul King|
|South Australia||Royal Adelaide Hospital||Dr Chien Li Homes-Liew|
|Western Australia||Royal Perth Hospital|
Princess Margaret Hospital for Children
|Prof Grant Waterer
Dr André Schultz
|Northern Territory||Alice Springs Hospital|
Royal Darwin Hospital
|Prof Graeme Maguire
Prof Anne Chang
If you work with patients with bronchiectasis at a hospital or health service and would like to contribute, please contact the ABR on 03 8637 8013 or firstname.lastname@example.org.
If you are a patient with bronchiectasis and would like to become involved in the registry, you may speak to your treating doctor and enquire as to whether or not they are contributing to the ABR. Please know that recruitment at this stage is ‘centre-based’, which means patients are enrolled based an existing agreements to take part as one of our participating centres. If you would like to register your interest to participate in the future, please contact the ABR at Lung Foundation Australia on email@example.com.