AUSTRALIAN BRONCHIECTASIS REGISTRY (ABR)

Non-cystic fibrosis (non-CF) bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. There is currently no cure for non-CF bronchiectasis and little information is available on the disease’s incidence, diagnosis or mortality rates in Australasia.

The Australian Bronchiectasis Registry (ABR) was established in 2015 by Lung Foundation Australia and the Australasian Bronchiectasis Consortium, an independent steering committee composed of leading respiratory physicians with expertise in clinical management and research in bronchiectasis.

The Australasian Bronchiectasis Consortium is proud to have international collaborations with the American Bronchiectasis Registry and the European Bronchiectasis Registry to leverage knowledge, expertise and optimise research outcomes.

Following the initial roll-out of the project, the registry has received agreements from more than 20 hospitals and health services across nearly all Australian States and Territories. The response has been highly successful, with recent expansion to New Zealand in progress which will enable recruitment to the newly-established New Zealand Bronchiectasis Registry.

State or TerritoryParticipating SitePrincipal Investigator
New South WalesConcord Repatriation General Hospital
Wyong Hospital
Westmead Hospital
Royal Prince Alfred Hospital
Sydney Children's Hospital
Westmead Children's Hospital
A/Prof Lucy Morgan
Dr Cameron Hunter
A/Prof Peter Middleton
Prof Peter Bye
Dr Louisa Owens
Dr Paul Robinson
QueenslandQueensland Children’s Hospital
Greenslopes Hospital
Mater Health Services
The Prince Charles Hospital
Prof Anne Chang
A/Prof Rachel Thomson
Dr Lucy Burr
Dr Daniel Smith
VictoriaMonash Medical Centre
The Royal Melbourne Hospital
Western Health
The Royal Children's Hospital
Dr Paul King
Dr Megan Rees
A/Prof Lata Jayaram
Dr Danielle Wurzel
South AustraliaRoyal Adelaide Hospital
The Queen Elizabeth Hospital and (APY) Lands
Dr Chien Li Homes-Liew
Dr Antony Veak
Western AustraliaRoyal Perth Hospital
Perth Children's Hospital
Sir Charles Gairdner Hospital
Prof Grant Waterer
Dr André Schultz
Dr Anna Tai
Northern TerritoryAlice Springs Hospital
Royal Darwin Hospital
Prof Graeme Maguire
Prof Anne Chang

If you work with patients with bronchiectasis at a hospital or health service and would like to contribute, please contact the ABR on 1800 654 301 or abr@lungfoundation.com.au.

If you are a patient with bronchiectasis and would like to become involved in the registry, you may speak to your treating doctor and enquire as to whether or not they are contributing to the ABR. Please know that recruitment at this stage is ‘centre-based’, which means patients are enrolled based an existing agreements to take part as one of our participating centres. For further information about the ABR, please contact the Australian Bronchiectasis Registry at Lung Foundation Australia on abr@lungfoundation.com.au or freecall 1800 654 301.