AUSTRALIAN BRONCHIECTASIS REGISTRY (ABR)

Bronchiectasis Registry logo

Non-cystic fibrosis (non-CF) bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. There is currently no cure for non-CF bronchiectasis and little information is available on the disease’s incidence, diagnosis or mortality rates in Australasia.

The Australian Bronchiectasis Registry (ABR) was established in 2015 by Lung Foundation Australia and the Australasian Bronchiectasis Consortium, an independent steering committee composed of leading respiratory physicians with expertise in clinical management and research in bronchiectasis.

The Australasian Bronchiectasis Consortium is proud to have international collaborations with the American Bronchiectasis Registry and the European Bronchiectasis Registry to leverage knowledge, expertise and optimise research outcomes.

Following the initial roll-out of the project, the registry has received agreements from more than 20 hospitals and health services across nearly all Australian States and Territories. The response has been highly successful, with recent expansion to New Zealand in progress which will enable recruitment to the newly-established New Zealand Bronchiectasis Registry.

State or TerritoryHealthcare CentrePrincipal Investigator
New South WalesConcord Hospital
Wyong Hospital
Westmead Hospital
Royal Prince Alfred Hospital
Sydney Children's Hospital, Randwick
A/Prof Lucy Morgan
Dr Cameron Hunter
A/Prof Peter Middleton
Prof Peter Bye
Dr Louisa Owens
QueenslandLady Cilento Children’s Hospital
Greenslopes Hospital
Mater Hospital Brisbane
The Prince Charles Hospital
Prof Anne Chang
A/Prof Rachel Thomson
Dr Lucy Burr
Dr Daniel Smith
VictoriaMonash Medical CentreDr Paul King
South AustraliaRoyal Adelaide HospitalDr Chien Li Homes-Liew
Western AustraliaRoyal Perth Hospital
Princess Margaret Hospital for Children
Prof Grant Waterer
Dr André Schultz
Northern TerritoryAlice Springs Hospital
Royal Darwin Hospital
Prof Graeme Maguire
Prof Anne Chang

If you work with patients with bronchiectasis at a hospital or health service and would like to contribute, please contact the ABR on 03 8637 8013 or abr@lungfoundation.com.au.

If you are a patient with bronchiectasis and would like to become involved in the registry, you may speak to your treating doctor and enquire as to whether or not they are contributing to the ABR. Please know that recruitment at this stage is ‘centre-based’, which means patients are enrolled based an existing agreements to take part as one of our participating centres. If you would like to register your interest to participate in the future, please contact the ABR at Lung Foundation Australia on abr@lungfoundation.com.au.