AUSTRALIAN BRONCHIECTASIS REGISTRY (ABR)
Non-cystic fibrosis (non-CF) bronchiectasis is caused by chronic infection of the airways and results in chronic cough, excess sputum production and in some cases chest pain, shortness of breath and coughing up of blood. There is currently no cure for non-CF bronchiectasis and little information is available on the disease’s incidence, diagnosis or mortality rates in Australasia.
The Australian Bronchiectasis Registry is a non-commercial research project that has been initiated by a group of Australian Respiratory Specialist doctors together with Lung Foundation Australia.
The main aims of this registry are to identify and collect health information from patients with non-Cystic Fibrosis (non-CF) Bronchiectasis for doctors to research the causes and to improve treatments. Ultimately, we want to discover a cure or vaccination for this debilitating disease which affects both children and adults.
The project has gained strong support from the international Bronchiectasis network. A key collaborative partnership with the American Bronchiectasis Registry and the European Bronchiectasis Registry has been formed allowing us to combine our knowledge and expertise to ensure the best research outcomes.
The initial stage will be a pilot project involving participants from the following 13 centres:
|State or Territory||Healthcare Centre||Principal Investigator|
|New South Wales||Concord Hospital|
Royal Prince Alfred Hospital
Sydney Children's Hospital, Randwick
|A/Prof Lucy Morgan
Dr Cameron Hunter
A/Prof Peter Middleton
Prof Peter Bye
Dr Louisa Owens
|Queensland||Lady Cilento Children’s Hospital|
Mater Hospital Brisbane
The Prince Charles Hospital
|Prof Anne Chang
A/Prof Rachel Thomson
Dr Lucy Burr
Dr Daniel Smith
|Victoria||Monash Medical Centre||Dr Paul King|
|South Australia||Royal Adelaide Hospital||Dr Chien Li Homes-Liew|
|Western Australia||Royal Perth Hospital|
Princess Margaret Hospital for Children
|Prof Grant Waterer
Dr André Schultz
|Northern Territory||Alice Springs Hospital|
Royal Darwin Hospital
|Prof Graeme Maguire
Prof Anne Chang
Following the initial stage to demonstrate the system works well, a broader roll-out of registrations from a mix of metropolitan, rural and remote healthcare centres in Australia and New Zealand is planned to commence in 2018.
If you would like to register your interest to be kept up-to-date on the Australian Bronchiectasis Registry’s progress you may like to contact the ABR Project Manager (Dan Jackson) directly:
Phone: +61 (0) 7 3251 3601